PERTHES KIDS FOUNDATION CALENDAR 2023:
JANUARY - Happy New Year 2023
FEBRUARY - Rare Disease Day, February 28, 2023
MARCH - Camp Perthes Applications
APRIL - Perthes Kids Art Contest
MAY - TBD
JUNE - TBD
JULY - Camp Perthes USA
AUGUST - Camp Perthes UK
SEPTEMBER - Camp Perthes Australia
OCTOBER - Perthes Kids Halloween Costume Showcase; Camp Perthes Español - South America (2024)
NOVEMBER - IPSG/PKF Perthes Parent Webinar; Holiday Hoodie Promotion
DECEMBER - Christmas/Holiday Fundraiser
Events Calendar 2020: Cancelled due to pandemic
SEPTEMBER
september 19
There will be a LIVE zoom link provided to all registered participants. This way we can all connect and see, meet, and chat with each other throughout the day, while doing our run/walk/rolls. Get ready to zoom in for Perthes! We look forward to seeing you all for this special event!
You can donate either here on our website (top of page) or you can visit our FACEBOOK fundraiser here, where you can contribute to our cause and share within your social network!
Don’t forget to send us your event photos or post them on social media and tag us!
AUGUST
AUGUST 31
JULY
JULY 13-17
JUNE
MAY
APRIL
MARCH
FEBRUARY
February 1-22
The Perthes Kids Rare Art Contest 2020 has officially begun! Please click on the button below to review the contest rules, and to learn more about our Rare Disease Day T-shirt & fundraiser! Best of luck to all of our special and rare, Perthes artists!
To see this year’s contest WINNERS and other Perthes art on display, just visit our Perthes Kids Gallery. All ages were welcome to submit artwork to us to be featured on our website! Please visit our Perthes Kids Image Gallery to find out how to support our cause (and our kid artists) by purchasing a shirt(s), that will be on sale until March 16, 2020.
JANUARY
Perthes Kids Foundation is a 2020 Platinum Member of the National Organization of Rare Disorders (NORD), and now has leadership directly involved with NORD. This will help raise the national and international profile of PKF and Perthes awareness, in general. This will also qualify Camp Perthes USA, which takes place in California, for certain state benefits within the rare disease and health community. PKF is very excited about the possibilities of working with NORD in 2020 and beyond! See the NORD press release, below.
DECEMBER
We're getting close to the end of another year! With that said, we'd love to hear from Perthes kids/teens about their New Year's resolution! What are you looking forward to, want to leave behind in 2019, want to try, want to do better, want to change, want to see? What vision do you have for yourself in 2020? 👀
Send us your thoughts/goals to 2020@pertheskids.org for a chance to win prizes from the new JUMANJI movie (USA shipping only)! Some of your New Year’s resolutions will be posted on our social media channels. Deadline is December 28 @ 12pm PST.
Have a Hippy New Year! 😆🎉
#Perthes2020
Here is our Perthes New Year’s Resolution list of some thoughts and goals for 2020, straight from the heart of kids affected by Perthes disease: 💙
1.) I want to be healthier and be an all around best version of myself I can be! - Louis
2.) My vision for 2020 is to get better in everything I do. I want to get faster and play more sports. I want to help my family more and play with my new puppies (our dogs had labs! We have 8 puppies). I also want to get better at cooking! - Jason
3.) My goal is to be released for more activity than walking, to eat healthier and to go see a professional soccer game. - Nick
4.) For 2020 my goals I have is to, be better at school, to be able to have my bones grow back more and be pain free. - Julian
5.) My new years resolutions are to stand up for myself more, make people more aware of perthes disease and to make new friends when I go to my new school! I cant wait for this year to be over I had a pretty tough time at school this year however my highlight was definitely camp perthes UK and I can’t wait for next years! - Toby
6.) I am looking forward to having the hardware taken out of my hip. I want to leave behind the surgeries I had. I look forward to seeing Washington D.C. this summer. And I vision myself walking again late summer! - Micah
7.) I have been told I have perthes this month. My goal is to try to keep doing karate and be able to walk without limping. I want see a lot of red pandas in 2020. I love jumanji my mommy just took me to see the second one! It was really funny. - Tyleo
8.) I am most looking forward to starting school out of her wheelchair. 2019 I spent the whole year in a chair, but my surgeon gave me the green light to start school on my feet yay! - Ruby
9.) My goal for 2020 is to train my new puppy. To help her learn new tricks and be better behaved. - Sam
10.) 2020 is going to be MY year! I am hopefully getting a hip replacement in the new year. It’s going to be a tough but I am ready to leave the days of pain behind. My dream vision of myself is that I will be able to put my own shoes on, walk, dance, run and keep up with my friends and just be me again. - Libby
11.) I want to keep making good grades and play sports again like I did before Perthes disease. I haven’t gotten to play football yet, so I can’t wait to try it! I want to see a cure for Perthes or at least a way to make it easier for kids than it has been for me. I also want to say thank you to Perthes Kids Foundation for everything that you do for all of us! – Elijah
Tune in Tuesday, December 17th @ 6pm CST (global times below), for another facebook live event of Joined At The Hip: Episode 4, hosted by Earl Cole & Dr. Harry Kim, with a surprise special guest! This episode will focus on Perthes Research & important Clinical Trials of 2020, but will also have bits of fun for the holidays! We will also give an update on the Adult Perthes Survey that was released back on May 1, and what sort of data we were able to collect, so far. This holiday special will contain some big announcements and other great information (as always), for Adults with Perthes, Parents of children with Perthes, Clinicians, Teachers, Researchers and Caregivers.
You can view the Joined At The Hip live stream on the Perthes Kids Foundation facebook page (and IGTV @pertheskids), or the International Perthes Study Group facebook page. Both pages will be streaming this live chat and discussion, simultaneously, from the Scottish Rite Children’s Hospital in Dallas, Texas, USA. There will be a Q&A after the episode, so we look forward to your questions. You can submit your questions in the facebook comments during the live episode, or you can email them ahead of time to info@pertheskids.org. We will address as many questions as we can within the timeframe of the episode (usually 1 hour). Thank you and Happy Holidays! See you soon!
Harry Kim is an orthopedic surgeon and Perthes specialist/researcher at Scottish Rite Children’s Hospital in Dallas, TX, and is the Founder & Director of the International Perthes Study Group.
Earl Cole is the Founder & Executive Director of the Perthes Kids Foundation and Camp Perthes International. He is also a former Perthes patient, that was diagnosed at the age of 7.
The LIVE stream for this episode will take place on facebook at 6pm CST (Central Standard Time, USA) but will be available for most countries to watch and participate LIVE, within their own timezone, as well (see times below). The recorded episode will be available for later viewing via Perthes Kids Foundation facebook page and at pertheskids.org/stories.
LIVE start time:
USA & Canada: TUESDAY, 7pm (EST), 6pm (CST), 4pm (PST)
UK: WEDNESDAY, 12AM-midnight (GMT)
Australia: WEDNESDAY, 11am (AEDT, Sydney)
NEW ZEALAND: WEDNESDAY, 1pm (NZDT)
South Africa: WEDNESDAY, 2am (SAST)
NOVEMBER
The Perthes Rare Bear promotion, from Perthes Kids Foundation & Rare Science, has ended. No more orders will be accepted. Deliveries have already started, worldwide. Please note that latin countries will begin receiving their bears throughout January. We will do another bear promotion some time in 2020. Thank you.
OCTOBER
Perthes Kids Halloween Costume Showcase
october 31, 2019
Thank you to all that participated in this year’s Halloween Costume Showcase! As you can see, we had lots of scary and creative submissions. We will be posting our top 5 consumes on social media soon, and they will also receive a prize from the movie, ZOMBIELAND: Double Tap (courtesy of Sony Pictures). All photos are available on our Perthes Kids Gallery page. Thanks again for the photo treats! Hope everyone had a very happy and spooktacular Halloween!
PKF will be in attendance at the National Organization for Rare Disorders (NORD) Breakthrough Summit from October 20-23.
SEPTEMBER
2nd Annual Fun Run/Walk for Perthes Kids Foundation & Camp Perthes International
September 21, worldwide
Join us on September 21st as we work to spread Perthes awareness, worldwide, for a full 24 hours, across several global timezones, and raise funds for Perthes Kids Foundation & Camp Perthes International! (registration below)
Step up, and step out! Gather your family & friends- form a team, cheer someone on, or run by yourself- together we can all help spread #perthesawareness! We would love to see the whole, global Perthes community participate in this Perthes Awareness Day event! Let’s own this entire day! Mark your calendar and share this event with your friends, family, and local community. To join in on the fun, and help support our mission, please make a donation on our event/fundraiser Facebook page, or click on the donation button above. (Suggested donation: $20.00 per participant, but any amount is accepted)
Whether you walk or run, pedal, ride or roll- wherever you are in the world- everyone can participate! Choose your path, your distance, and show your support. On September 21st, do it for Perthes! Don’t forget- post a picture of yourself and/or your group on our fundraiser page (or email it to us)- we want to see you and how far our mission has reached!
ADDED BONUS: Everyone who posts a photo of themselves and/or their group on the day of the event (Saturday, September 21st, 2019) AND has a confirmed donation to this event will be entered into a drawing for an exclusive Perthes Kids Foundation prize! (Three separate prizes will be awarded.)
Sign up today (click the registration button below) and walk/run for all Perthes Kids and to help spread #perthesawareness around the world. Again, you can enter through our Facebook event/fundraiser, or make your donation right here. Just be sure to mention “Fun Run/Walk for Perthes”!
#JoinTheMovement #WalkforPerthes
As an option, you can download and print out, our official PKF racer bibs (4 versions), to wear them, or use as a sign, during the event: iWalkforPerthes, iRunforPerthes, iRollforPerthes, iRideforPerthes
4th Annual Camp Perthes Australia
September 30-October 4 in sunshine coast, queensland
AUGUST
2nd Annual Camp Perthes UK
august 12-16 in winchester, england
JULY
7th Annual Camp Perthes USA
July 15-19 in Irvine, CA
JUNE
MAY
Tune in May 3 @ 5pm CST (global times below), for another facebook live event of Joined At The Hip: Episode 3, hosted by Dr. Harry Kim & Earl Cole, with special guest, Dr. Joel Wells! This episode will focus on the upcoming ADULT PERTHES SURVEY (release date: May 1), and its importance to Perthes research. The survey will be available, worldwide, for all adults over the age of 18, living with the effects of Perthes disease. We want to better understand your Perthes journey and your current quality of life/health, since your diagnosis. This episode will contain great information for Adults with Perthes, Parents of children with Perthes, Clinicians, Researchers and Caregivers.
You can view the Joined At The Hip live stream on the Perthes Kids Foundation facebook page (and IGTV @pertheskids), or the International Perthes Study Group facebook page. Both pages will be streaming this live chat and discussion, simultaneously. We look forward to your questions! You can submit your questions in the comments during the live episode, or you can email them ahead of time to info@pertheskids.org. We will address as many questions as we can within the timeframe of the episode. Thank you.
Dr. Harry Kim is an orthopedic surgeon and Perthes specialist/researcher at Scottish Rite Children’s Hospital in Dallas, TX, and is the Founder & Director of the International Perthes Study Group.
Dr. Joel Wells is Assistant Professor of Orthopaedic Surgery at the University of Texas Southwestern Medical Center, a medical education and biomedical research institution in Dallas. He specializes in adult adolescent and adult patients requiring hip replacement surgery.
Earl Cole is the Founder & Executive Director of the Perthes Kids Foundation and Camp Perthes International. He is also a former Perthes patient, that was diagnosed at the age of 7.
Dr. Tony Herring (rescheduled) is an orthopedic surgeon who has been treating Perthes disease for over 40 years and is well-known as the pioneer of The Herring Classification, which classifies LCPD based on the height of the lateral aspect of the capital femoral epiphysis during the fragmentation stage of the disease. He served as Chief of Staff for Scottish Rite Hospital for 34 years and now serves as the Chief of Staff Emeritus.
The LIVE stream for this episode will take place on facebook at 5pm CST (Central Standard Time, USA) but will be available for most countries to watch and participate LIVE, within their own timezone, as well (see times below). The recorded episode will be available for later viewing via Perthes Kids Foundation facebook page and at pertheskids.org/stories.
LIVE start time:
USA & Canada: FRIDAY, 6pm (EST), 5pm (CST), 3pm (PST)
UK: Friday, 11pm (GMT)
Australia: SATURDAY, 8am (AEST, Sydney)
NEW ZEALAND: SATURDAY, 10AM
South Africa: Saturday, 12am
APRIL
MARCH
Perthes Kids Art Contest en Español
We had the honor of attending the Orthopedic Hip Surgery Symposium, at the Loma Linda University School of Medicine, which included informative presentations about Hip Dysplasia in Children and Legg-Calvé-Perthes disease, by two of our very own PKF board members, Dr. Rachel Goldstein & Dr. V. Salil Upasani.
PKF is always happy to participate, listen, and learn, as much as we can about Perthes disease, in order to share the knowledge with our ever-growing and resilient, Perthes community that we proudly serve. 🌐
FEBRUARY
You Are Invited!
Perthes Statistics, Research, Treatments, Surgery, Bone Regrowth, Parent Support, Adulthood, Global Advocacy, Awareness, Social Media, Cure, Perthes Q&A
Perthes Kids Foundation will be attending Controversies in Pediatric Limb Reconstruction (CPLR), which will be held at Texas Scottish Rite Hospital for Children in Dallas, Texas on February 8-9, 2019. CPLR is an interactive symposium with a focus on Blount’s disease, congenital pseudoarthrosis of the tibia, congenital femoral and tibial deficiencies, Perthes disease and bone biology. There will be a special presentation and discussion dedicated to Legg-Calvé-Perthes disease on Saturday, February 9th.
join us on facebook live!
Tune in February 8 @ 6pm CST, for our facebook live event of Joined At The Hip: Episode 2, hosted by Dr. Harry Kim & Earl Cole. You can view the live stream on the Perthes Kids Foundation facebook page, or the International Perthes Study Group facebook page. Both pages will be streaming this live chat and discussion, simultaneously. We look forward to your questions!
Dr. Harry Kim is an orthopedic surgeon and Perthes specialist/researcher at Scottish Rite Children’s Hospital in Dallas, TX, and is the Founder & Director of the International Perthes Study Group.
Earl Cole is the Founder & Executive Director of the Perthes Kids Foundation and Camp Perthes International. He is also a former Perthes patient, that was diagnosed at the age of 7.
Perthes Kids Foundation is proud to, once again, participate in Rare Disease Day with our 2nd Annual Perthes Kids Art Contest! Last year’s contest was a big success, so we’re hoping to have even more Perthes Kids in 2019 to #ShowYourStripes through your creativity. For more information on how to participate, just click on the button below.
There will be additional prizes for our top winners!
Competition is for ages 7-15, but kids of any age may submit artwork to help raise Perthes awareness. Children 6 and under can download our optional coloring page. Every work of art will be displayed on our WALL OF ART in our Perthes Gallery. The submission deadline is February 21st…good luck to all!
JANUARY
Perthes Kids Selfie-Photo Scavenger Hunt contest
One of our favorite activities at Camp Perthes is the annual scavenger hunt! It is incredible to see the teamwork and ambition as our campers strive to be first to collect and check in their loot! We want to bring a little fun to all our Perthes Kids in the new year, and yes, just like at camp, there will be prizes! (Please note: ALL can participate, but prizes for USA only.)
Through PKF’s partnership with Sony Pictures Entertainment, we are able to offer special prizes from the new Spider-Man: Into the Spider-Verse movie & other cool merchandise from other movies, as well! Our mystery grand prize will go to our top winner of this year’s AMAZING scavenger hunt.
Game Ended 1/6/19 @ 10pm EST / 7pm PST
THANK YOU to all that participated!
rules of the game
In order to play, find as many items from the following list as possible. Get creative! Take a selfie with your items (or have someone take it for you) and send to info@pertheskids.org. This email is the ONLY place where submissions will be accepted! Only one submission allowed, so all photos must be part of the one submission (use attachments, not multiple emails). You should try and combine as many items as you can in a single photo (*please do not submit more than 5 photos). Make sure all items are clearly visible in photos. Please include name, age, perthes hip, location, and number & name of items found. Kids with the most correct items, submitted in the fastest time, win a prize! Only a select number of prizes are available, but every participant will get their best or funniest photo added to our PKF gallery and/or social media channels.
Photos must be taken on January 5 and/or 6, 2019.
Contest is for ages 3-17 only.
parents/siblings are not allowed to “physically” help with the searching, unless perthes kid is in casts or wheelchair, or under 7 years old.
perthes kid must physically appear in all photos with items.
submit photos (no more than 5) to info@pertheskids.org with “perthes scavenger” in the subject line, and name the specific items in each photo.
Contest begins Saturday, January 5 @ 10am PST. The item list will be posted at that time right here on our website, as well as, announced in our perthes support group on facebook. We will also include a list of some of the prizes.
Contest ends Sunday, January 6 @ 7pm PST. No submissions allowed after time.
the top 10 finishers win a prize. All others still get their photo published!
Winners announced on Friday, January 11, and prizes shipped out soon after.
Are you ready? Get set… GO!!!
*The countdown has begun. You have 33 hours to complete your list.
2018
DECEMBER
DECEMBER 25: SEASON’S GREETINGS FROM PERTHES KIDS AROUND THE WORLD
Perthes Kids Holiday Hoodies available until December 31
*** Eagle Rare Life Voting ended December 5 ***
THANK YOU FOR VOTING!!! 🗳 You can vote every 24hrs, on multiple devices! Thank you for your continued support in voting for Perthes Kids Foundation to win a $50,000 grant for the Eagle Rare Life Award. If we are fortunate enough to win, 100% of the funds will be used to continue our mission of helping kids suffering from Legg-Calvé-Perthes disease, around the world! #PerthesAwareness
Just click on the link, and you can vote every 24hrs to help our cause: pertheskids.org/vote 😁
NOVEMBER
#GivingTuesday: November 26
Wow, the facebook community raised over $125 million for causes on #GivingTuesday (Nov 26, 2018)!!! So grateful to be included in this very worthy cause, no matter how small or rare! Thank you to ALL for your #GivingTuesday contributions through facebook and the pertheskids.org website. We were so honored and humbled to see all of the many fundraisers created, or shared, on behalf of Perthes Kids Foundation! 💗 Because of supporters like you, we stay super motivated in our mission, to raise global awareness and provide resources & support for children, adults & families, affected by Legg-Calvé-Perthes disease. 100% of the funds will be used for our ongoing Perthes advocacy and research efforts around the world. So a big THANK YOU once again, for the love and support on #GivingTuesday and beyond! "This is what Perthes looks like."
PKF Cycling Team South Africa: Telkom 947 Cycle Challenge in Johannesburg, November 18
OCTOBER
SEPTEMBER
CAMP PERTHES AUSTRALIA, September 30 - October 5
AUGUST
CAMP PERTHES UK, August 6 - 10
JULY
1st annual virtual fun run/walk for perthes kids!
Join us on July 28th as we work to spread awareness & raise funds for the Perthes Kids Foundation and Camp Perthes International! #JoinTheMovement #WalkForPerthes
Gather your family & friends- form a team, or run by yourself- this is a global event. Together we can all help spread #PerthesAwareness! We'd like to see the whole Perthes global community participate in this July 28th event! Mark your calendar and share this event with your friends and local community. To join in on the fun, please make a donation on our event/fundraiser facebook page, or click on the donation button above. (Suggested donation: $15.00 per participant)
Whether you walk or run, pedal, ride, or roll, everyone can participate, no matter what age, no matter where you are in the world. Choose your path, your distance, and show your support. Even if you're already a daily runner/walker, just be sure to "do it for Perthes" on July 28th! DON'T FORGET- post a picture of yourself or your group on our fundraiser page (or email it to us) - we want to see YOU and see how far our mission has reached!
Added bonus: Everyone who posts a photo of themselves and/or their group on the day of the event (Saturday, July 28, 2018 from 8:00 am-8:00 pm CST) AND has a confirmed donation to this event will be entered into a drawing for an exclusive Perthes Kids Foundation prize! (Three separate prizes will be awarded.)
Sign up today and walk/run for all the Perthes Kids and Legg-Calve-Perthes disease, around the world. Again, you can enter either through our facebook page, or make your donation right here on our website. Just make sure you mention "Fun Run/Walk for Perthes"! Thank you for your support. Good luck!
